Questionnaire on “Bioethics and Disabilities” – Call for submissions

The Special Rapporteur on the rights of persons with disabilities, Ms. Catalina Devandas-Aguilar, is currently preparing a report on bioethics and disability, which will be presented at the 43rd  session of the Human Rights Council in March 2020. This study aims to explore bioethical responses to disability and to discuss areas where potential tensions could emerge, including notions of normality and quality of life, prenatal diagnosis and disability-selective abortion, controversial and/or irreversible treatments, and euthanasia and assisted suicide.

She  welcomes relevant inputs as per the questionnaire below to inform the report from Member States, international and regional organizations, UN agencies, funds and programs, organizations of and for persons with disabilities, civil society, national human rights institutions and other national independent mechanisms designated or established to monitor the implementation of the Convention on the Rights of Persons with Disabilities, disability or equality Ombudspersons, scholars, research institutions and policy think tanks, business actors, community movements, and private individuals.

Submissions should be sent by e-mail to the address no later than 30 September 2019, and in accessible formats (Word), in English, French or Spanish). Concise responses are encouraged, inclusive of relevant attachments where available.

Submissions received will be made publicly available on this website, unless otherwise explicitly indicated.

Specific information request in English, French, Spanish (Word).

Replies received as of 17 December 2019

Member States

International organizations

National Human Rights Institutions (NHRIs)

Civil society, including organizations of persons with disabilities, and individual submissions