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01 November 2022
The Office of the UN High Commissioner for Human Rights is conducting research on the protection of the human rights of persons living with rare diseases and their families and carers. The Office would be particularly interested in receiving the following information:
Contributors are encouraged to share any resources, particularly peer-reviewed studies, which may be of relevance.
Contributions may be sent by e-mail/ or post. They must be received by 1st November 2022.
E-mail subject line:
Rare diseases and human rights
Office of the UN High Commissioner for Human Rights
Economic, Social and Cultural Rights Section
Development and Economic and Social Issues Branch
CH-1211 Geneva 10, Switzerland
N/A. Articles, Reports, academic studies and other types of background materials can be attached as an annex to the submission or shared through hyperlinks within the body of the emails. For relevant reports or information, please provide a link to the document if available online, or attach if not available online.
English, French and Spanish
Unless otherwise requested, submissions may be posted on this page without further recourse to the contributor. Should you not wish to have your contribution published, please clearly indicate this in your document.