Albinism is a rare, non-contagious, genetically inherited condition which occurs worldwide regardless of ethnicity or gender. It most commonly results in the lack of melanin pigment in the hair, skin and eyes (oculocutaneous albinism), causing vulnerability to sun exposure. Albinism is still profoundly misunderstood, socially and medically. In some parts of the world, the physical appearance of persons with albinism has been the basis of erroneous beliefs and myths influenced by superstition, which foster their marginalization and social exclusion.
Persons with albinism are a unique group whose human rights issues have generally gone unnoticed for centuries resulting in them becoming victims of deeply engraved stigma, discrimination and violence across various countries.
UN Human Rights supports and facilitates the work of the Independent Expert on the enjoyment of human rights by persons with albinism in the preparation of reports, concept notes informing Member States of allegations of human rights violations against them, and other projects within the scope of the mandate.
Albinism Worldwide [PDF]
This groundbreaking report aims to provide a comprehensive account of the human rights situation of people with albinism around the world to help to build solidarity among the global albinism community.
Achievements of the mandate
This report presents key indicators of substantial progress in the realization of the initial vision of the mandate, identifies continuing challenges, and makes recommendations on ways to maintain the gains and address the gaps identified.
Best practices [PDF]
This document summarizes measures for action plans and provides recommendations for interventions, and resources for States seeking to develop their own interventions. It recognizes exemplary interventions under the Regional Action Plan for Africa and identifies relevant best practices worldwide.
Independent Expert on the enjoyment of human rights by persons with albinism
The Independent Expert is mandated by the Human Rights Council to undertake a variety of tasks, including working with States, to help end violence and discrimination against persons with albinism.
News and statements
08 Sep 2023
Panama: Fast-track implementation of the law on albinism, urges UN expert
25 Aug 2023
UN expert on rights of people with albinism to visit Panama
12 Jun 2023
Inclusion of persons with albinism continues to be key to ending inequality: UN expert
Pan African Parliament Guidelines on Accusations of Witchcraft and Ritual Attacks: Eliminating Harmful Practices and other Human Rights Violations
AU Plan of Action on Ending Attacks and Discrimination against Persons with albinism (2021 to 2031)
13 July 2023
A/78/167: Report of the Independent Expert on the enjoyment of human rights by persons with albinism, Muluka-Anne Miti-Drummond - Climate change and persons with albinism
01 March 2023
A/HRC/52/36/Add.1: Report of the Independent Expert on the enjoyment of human rights by persons with albinism, Muluka-Anne Miti-Drummond
27 December 2022
A/HRC/52/36: Human rights defenders working on albinism - Report of the Independent Expert on the enjoyment of human rights by persons with albinism
20 July 2022
A/77/199: People with albinism on the move - Report of the Independent Expert on the enjoyment of human rights by persons with albinism
04 January 2022